Dr. Fay started out our parent meeting together by stating that Carson was one of the most hyperaroused kids she has ever seen in her office before. Tristyn was the gal who did the testing and she has an expertise of working with kids like Carson...and she even had a hard time working with him. Carson required a very highly structured environment and needed tasks to be broken down into small segments for him.
Here is what she said are areas of concern for Carson:
Severely hyperaroused
Unable to self soothe or self regulate
Aggressive, destructive and out of control
Lacks boundaries
Unable to tolerate frustration
Attention Deficit Disorder
Overall seen as having PDD-NOS (for more info on this, check out previous blog entry)
Hmmm...OK, no real big news here other than she thinks he has ADD...OK, maybe that's not such a big surprise either!
She feels that Carson needs a comprehensive day treatment program (not really sure what that means) to help him with his self regulation/self soothing skills. She also feels that because of the severity of his hyperarousal, we can expect it to be very difficult for Carson to be able to function in a mainstream elementary environment.
However, despite his hyperaroused state, his IQ tested as 'average'. It would be very interesting to see what happens to his IQ when we are able to get his other issues resolved.
I immediately got overwhelmed by this information because I could forsee a lot of work that lie ahead of me...I'm sure the least of which will involve a fight with the school district. Dr. Fay did recommend that we contact PAVE and have a PAVE advocate help us meet with the school district. PAVE is a parent advocacy group that knows a lot about the rules and regulations surrounding having a child with special needs.
Kelly took this meeting really well. He was easily able to relate to this information since this is how he saw himself as a child. In that respect, I feel that Kelly could totally relate to Carson and what he is experiencing.
So, that's it for now! I'll update as more stuff progresses...
2 comments:
Getting answers is ALWAYS good news. It's the first step in the process of getting help, right? I can see how it's overwhelming, but YOU CAN DO IT!! I've heard of PAVE but never looked into it. I'm sure that you'll get it figured out. I sympathize with you and the weight of more issues to tackle, but I can't help but cheer that you've found more pieces to the puzzle.
Good day !.
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